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January 24th EHMA attended a mini-conference in the European Parliament on learning disabilities. The conference brought together academic and service experts dealing with the topic of Down Syndrome (DS). Central to the conference were the practices developed by the Down Syndrome Centre in the city of Pula, Croatia. The Centre was recently recognised by the WHO as a model of excellence, to serve as an example for replication throughout the EU. The headmaster of the centre, Dr. Branka Butorac, was extensively lauded for setting up the first non-governmental institution for the rehabilitation of people with DS in Croatia, and for her efforts to break down some stigmas of DS. Being the mother of a daughter with DS, Dr. Butorac designed the rehabilitation processes in the Down Syndrome Centre Pula to reflect real needs of persons with DS and their families. Key principles of the facility are a high involvement of all family members, and a programme geared at allowing people with DS to become self-sufficient members in their communities.<\/p>\n
The Centre developed a unique rehabilitation programme in Croatia under the name \u2018PAPO\u2019 which brings together young volunteers with an interest in social work and people with DS from the Centre. PAPO establishes interaction between them, relying on the volunteers as social assistants and inspiring them to become advocates of the capabilities of people with DS. Since 2011, the Centre has welcomed social workers in practical training with an Erasmus or Leonardo grant to inspire good practice across the continent.<\/p>\n
Since its foundation the Down Syndrome Centre has helped along 470 visitors from within Croatia and abroad. The Centre accepts residents of all ages and provides interdisciplinary training to support development and self-sustainability. The majority of beneficiaries are under the age of seven, and receive assistance with basic motor skills and speech pathology. For older beneficiaries, the courses include various tasks necessary to ensure the independent and integrated living of a DS person. Beyond household chores, the courses aim to fully acknowledge the capabilities of persons with DS, and may also involve special vocational training. For this training, the Centre has an ongoing collaboration with caf\u00e9 \u201cUliks\u201d in Pula, where people with DS regularly come and accompany the staff to provide the catering. The goal of this initiative is, again, the social inclusion in the best possible way as well as the promotion of socially inclusive policies.<\/p>\n
The Down Syndrome Centre Pula certainly managed to step into the spotlight with this conference, as up to seven MEP\u2019s from Croatia and Slovenia attended parts of the session. After the speeches and the sharing of experiences, all attendees were invited to restaurant \u201cLes Filles\u201d in the European Parliament, where Down Syndrome Centre residents welcomed conference attendees with coffee and cake.<\/p>\n
Izvor: ehma.org<\/p>\n","protected":false},"excerpt":{"rendered":"
January 24th EHMA attended a mini-conference in the European Parliament on learning disabilities. The conference brought together academic and service experts dealing with the topic of Down Syndrome (DS). Central to the conference were the practices developed by the Down Syndrome Centre in the city of Pula, Croatia. The Centre was recently recognised by the WHO as a model of excellence, to serve as an example for replication throughout the EU. The headmaster of the centre, Dr. Branka Butorac, was extensively lauded for setting up the first non-governmental institution for the rehabilitation of people with DS in Croatia, and for her efforts to break down some stigmas of DS. Being the mother of a daughter with DS, Dr. Butorac designed the rehabilitation processes in the Down Syndrome Centre Pula to reflect real needs of persons with DS and their families. Key principles of the facility are a high involvement of all family members, and a programme geared at allowing people with DS to become self-sufficient members in their communities. The Centre developed a unique rehabilitation programme in Croatia under the name \u2018PAPO\u2019 which brings together young volunteers with an interest in social work and people with DS from the Centre. […]<\/p>\n","protected":false},"author":1,"featured_media":4049,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"pgc_sgb_lightbox_settings":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_newsletter_tier_id":0,"footnotes":"","jetpack_publicize_message":"European Parliament hosts conference on Down Syndrome","jetpack_is_tweetstorm":false,"jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false}}},"categories":[2],"tags":[],"jetpack_publicize_connections":[],"aioseo_notices":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/Panel.jpg?fit=1632%2C1224&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p78Mt7-13i","jetpack-related-posts":[{"id":4135,"url":"https:\/\/www.downcentar.hr\/hr\/2017\/03\/30\/konferencija-o-rehabilitaciji-osoba-s-downovim-sindromom\/","url_meta":{"origin":4048,"position":0},"title":"Konferencija o rehabilitaciji osoba s Downovim sindromom","author":"admin","date":"30\/03\/2017","format":false,"excerpt":"Na poziv hrvatskih zastupnika u Europskom parlamentu Dubravke \u0160uice, Ivane Maleti\u0107 i Ivana Jakov\u010di\u0107a te u suradnji s Centrom za rehabilitaciju za osobe s Downovim sindromom (DS) i njihove obitelji u Puli, u Bruxellesu je danas odr\u017eana konferencija pod naslovom \u201eVi\u0161edisciplinarna rehabilitacija osoba s Downovim sindromom - uvjet za integraciju\u201c.\u2026","rel":"","context":"U "Novosti"","block_context":{"text":"Novosti","link":"https:\/\/www.downcentar.hr\/hr\/category\/novosti\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/image2.jpg?fit=620%2C413&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/image2.jpg?fit=620%2C413&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/image2.jpg?fit=620%2C413&ssl=1&resize=525%2C300 1.5x"},"classes":[]},{"id":4129,"url":"https:\/\/www.downcentar.hr\/hr\/2017\/03\/30\/zastupnica-dubravka-suica-otvara-konferenciju-multidisciplinary-rehabilitation-of-down-syndrome-the-condition-of-the-integration\/","url_meta":{"origin":4048,"position":1},"title":"Zastupnica Dubravka \u0160uica otvara konferenciju “Multidisciplinary rehabilitation of Down Syndrome – the condition of the integration”","author":"admin","date":"30\/03\/2017","format":false,"excerpt":"Zastupnica Dubravka \u0160uica otvara konferenciju \"Multidisciplinary rehabilitation of Down Syndrome - the condition of the integration\" koju u suradnji s Down Syndrome centar Pula organizira zajedno sa zastupnicom Ivana Maleti\u0107 i zastupnikom Ivan Jakov\u010di\u0107.","rel":"","context":"U "Novosti"","block_context":{"text":"Novosti","link":"https:\/\/www.downcentar.hr\/hr\/category\/novosti\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/parla-1.jpg?fit=960%2C960&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/parla-1.jpg?fit=960%2C960&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/parla-1.jpg?fit=960%2C960&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/parla-1.jpg?fit=960%2C960&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":4042,"url":"https:\/\/www.downcentar.hr\/hr\/2017\/03\/30\/clanovi-centra-down-syndrome-pula-stigli-u-dvodnevni-posjet-europskom-parlamentu\/","url_meta":{"origin":4048,"position":2},"title":"\u010clanovi centra Down Syndrome Pula stigli u dvodnevni posjet Europskom parlamentu","author":"admin","date":"30\/03\/2017","format":false,"excerpt":"\u010clanovi centra Down Syndrome Pula stigli su danas u dvodnevni posjet Europskom parlamentu na poziv zastupnica Dubravka Suica i Ivana Maleti\u0107 (EPP) i zastupnika Ivan Jakov\u010di\u0107 (ALDE). U tijeku je predavanje u EP-u o njegovom radu i funkcijama, dok \u0107e sutra biti odr\u017eana konferencija \"Multidisciplinary rehabilitation of Down Syndrome \u2013\u2026","rel":"","context":"U "Novosti"","block_context":{"text":"Novosti","link":"https:\/\/www.downcentar.hr\/hr\/category\/novosti\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/u-briselu.jpg?fit=1200%2C900&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/u-briselu.jpg?fit=1200%2C900&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/u-briselu.jpg?fit=1200%2C900&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/u-briselu.jpg?fit=1200%2C900&ssl=1&resize=700%2C400 2x, https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/u-briselu.jpg?fit=1200%2C900&ssl=1&resize=1050%2C600 3x"},"classes":[]},{"id":3475,"url":"https:\/\/www.downcentar.hr\/hr\/2016\/08\/17\/volonterski-kamp-nasicana-u-puli\/","url_meta":{"origin":4048,"position":3},"title":"Volonterski kamp Na\u0161i\u010dana u Puli","author":"admin","date":"17\/08\/2016","format":false,"excerpt":"O kampu, Puli, centru za rehabilitaciju i drugim doga\u0111ajima profesor An\u0111elko Cvijetovi\u0107 je za TV Na\u0161ice napisao nekoliko re\u010denica. \u201eS koncertom Parnog valjka i Akija u Areni, u pono\u0107 je okon\u010dan na\u0161 II. integracijski volonterski kamp u Centru za rehabilitaciju Down sindrom centru Pula! Hvala DSC Pula za ovaj zavr\u0161ni\u2026","rel":"","context":"U "Novosti"","block_context":{"text":"Novosti","link":"https:\/\/www.downcentar.hr\/hr\/category\/novosti\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2016\/08\/pula-otvoreno-srce-nasice7.jpg?fit=680%2C400&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2016\/08\/pula-otvoreno-srce-nasice7.jpg?fit=680%2C400&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2016\/08\/pula-otvoreno-srce-nasice7.jpg?fit=680%2C400&ssl=1&resize=525%2C300 1.5x"},"classes":[]},{"id":3988,"url":"https:\/\/www.downcentar.hr\/hr\/2017\/03\/30\/u-europskom-parlamentu-ugosceni-sticenici-down-syndrome-centar-pula\/","url_meta":{"origin":4048,"position":4},"title":"U Europskom parlamentu ugo\u0161\u0107eni \u0161ti\u0107enici Down Syndrome Centar Pula","author":"admin","date":"30\/03\/2017","format":false,"excerpt":"U sije\u010dnju smo u Europskom parlamentu ugostili \u0161ti\u0107enike Down Syndrome Centar Pula koji su nam pokazali kako se uporno\u0161\u0107u i vrijednim radom mo\u017ee posti\u0107i puno i zahvaljuju\u0107i njima Hrvatska je uzor svima u EU. \u017delimo podi\u0107i svijest o va\u017enosti integracije osoba s Downovim sindromom i zato je na\u0161 cijeli ured\u2026","rel":"","context":"U "Novosti"","block_context":{"text":"Novosti","link":"https:\/\/www.downcentar.hr\/hr\/category\/novosti\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/eu-p-1.jpg?fit=1200%2C675&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/eu-p-1.jpg?fit=1200%2C675&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/eu-p-1.jpg?fit=1200%2C675&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/eu-p-1.jpg?fit=1200%2C675&ssl=1&resize=700%2C400 2x, https:\/\/i0.wp.com\/www.downcentar.hr\/wp-content\/uploads\/2017\/03\/eu-p-1.jpg?fit=1200%2C675&ssl=1&resize=1050%2C600 3x"},"classes":[]},{"id":4057,"url":"https:\/\/www.downcentar.hr\/hr\/2017\/03\/30\/u-europarlamentu-predstavljena-rehabilitacija-osoba-s-downovim-sindromom\/","url_meta":{"origin":4048,"position":5},"title":"U Europarlamentu predstavljena rehabilitacija osoba s Downovim sindromom","author":"admin","date":"30\/03\/2017","format":false,"excerpt":"Na poziv zastupnika Ivana Jakov\u010di\u0107a te zastupnica Dubravke \u0160uice i Ivane Maleti\u0107, Europski parlament su posjetili polaznici rehabilitacijskih programa Centra za Downov sindrom iz Pule. 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